Last weekend I went on a girls’ trip to Madison, WI with my daughters and my mom. As you can imagine, I was a little concerned about trying to navigate eating while there with Asa’s multiple food allergies in combination with my Celiac Disease. Avoiding milk, egg, peanuts, tree nuts, and gluten isn’t exactly an easy task! I posted in some food allergy groups I’m in on Facebook looking for recommendations for our travels and some people definitely delivered! I also had several people tell me that Madison was a great city for food allergies and let me tell you… they were right!
The first day we got there, we went to a restaurant called Ollie’s based off of a recommendation. It was such an awesome place! Looking at their website immediately made me feel comfortable. They talk about food allergies on their home page which is always a great sign. When you walk in the door, they offer fidgets and sensory items to take to your table. They also provide noise cancelling headphones if you need them! They had a vegan menu and a regular menu and their menus clearly labeled gluten free items as well. The waitress was great and went to the back to talk to the chef about Asa’s allergies to ensure what we wanted to order would be safe for her. The kids were excited because they even had MARKERS instead of crayons for the kids menus. This was their dream come true! I was able to eat cheese curds (a Wisconsin staple) that were gluten free and they were delicious! We had no reactions and everything was super yummy!
That night we went to an ice cream shop that was recommended by multiple people – The Chocolate Shoppe. This ended up being Asa’s favorite part of the whole trip. She’s never ordered “ice cream” from a restaurant before. We’ve always been nervous to and not many places have safe options for her. But since multiple people recommended them, we decided to try. Their website also made me feel better about their awareness of allergens. She got the Strawberry Hibiscus Italian Ice and LOVED IT! She could not stop talking about how she got ice cream from a shop. It was the first thing she told her dad on the phone! They also had great gluten free choices for me!
The next day we hit multiple stops! We went to Yola’s Cafe for breakfast. We had to wait quite a while because it was a Saturday morning and they were busy, but it was really good! They had amazing, fluffy gluten free waffles and were able to make bacon in their separate fryer just for Asa!
For dinner that day, we went to bartaco which ended up being the best meal we had the whole time – so good in fact that we went back again the next day before leaving town! I picked the restaurant based solely on the fact that they were rated high on the Find Me Gluten Free App and was planning on Asa eating food we brought for her. When we got there, I asked the waitress about the menu and found that there were only a few items that weren’t gluten free! Yay for me! I then told her that I was sure Asa probably couldn’t eat there and we brought her food. She asked what her allergies were so I told her. She then uttered a statement that I’ve never had any server say to me before… she said, “Oh! That’s really not that hard!” And then she proceeded to tell me all of the things on the kids menu that she could eat! I was stunned. I’ve never had anyone tell me that her allergies weren’t that hard. The waitress has no idea what she did for me that night! She made me feel so calm and comfortable. Asa was able to eat chicken, corn wheels, and a fruit kabob. She scarfed it so fast and was so excited to come back the next day for more! If only every restaurant experience could be like our experience at bartaco!
My delicious gluten free tacos!
Overall, our experience eating out in Madison, WI with food allergies far exceeded my expectations! I packed a ton of food that we didn’t even have to touch because of how much Asa got to eat out. I had to come home feeling jealous of our experience in Madison! I hope this blog helps other travelers!
I just need to take a minute to acknowledge how much it means to an allergy parent when other parents take the time and energy to go out of their way to make my child feel included.
If you’re an allergy parent, you will immediately know what I mean. And if you’re not an allergy parent, I hope you take a couple minutes to read this to understand how just a couple small gestures can mean the absolute world to someone.
We have been incredibly fortunate to be surrounded by some amazing families so far in Asa’s life. Her friends at school have been awesome with her allergies. I’m sure a lot of this is due to the wonderful teachers that she has had and the way that they educate the kids in her class about her allergies. But it is also due to the kids’ amazing parents. This has been evident by how many parents have taken the time to reach out to me personally when planning birthday parties, in-class treats, and in-class parties to make sure that Asa has safe snacks and treats so that she isn’t left out. We are used to bringing our own goodies to birthday parties and keeping safe treats at school for her. It’s just part of her life. But parents making her feel included not only means the world to us, it means the world to HER.
Today we went to a birthday party where the mom reached out several times ahead of the party to make sure they had safe treats in lieu of cupcakes for Asa. It was adorable because the birthday kids (they are twins) were both so excited to come show Asa the snacks they got her and Asa was beaming. One kid that didn’t know Asa asked why she had a tub of icing sitting at her spot of the table and the birthday girl said, “Because Asa has allergies and the cupcakes aren’t safe for her! So we got her something that is!” The pride on Asa’s face was so evident. Her friends had her back.
I can’t overstate these moments. As a parent, there is nothing better than watching my kid’s friends stick up for her and keep her safe. And as a mom, nothing means more than other parents going the extra mile to make my daughter feel included. They spent extra money on her today just to do that. And it doesn’t go unnoticed by me. Those are moments I don’t forget. And this wasn’t the first time. Other parents have told me that their kid begged to have an “Asa-safe” cake or told them to make sure to buy Skittles because Asa loves them.
These little acts of kindness mean more than these parents and kids will ever know. So if you are ever faced with an opportunity to do one, I really encourage you to think of a way to include those that are probably left out a lot. They won’t forget it! ❤️
Asa with her tub of icing, Skittles, and Starburts 😍
Asa is now 5 1/2 years old. A few months ago, I was in the car with her and I was running to pick up some dinner for me while my husband was in our other car running to get food for him and the other kids (that’s life with Celiac Disease for you…). From the backseat, Asa said, “Mom, can we please stop and get some food for me too?” Thinking she meant something from the grocery store I said, “No, we already have food for you at home.” She replied, “No, Mom. Can we please stop at a restaurant and get something for me? I don’t even care what it is. I’ll eat anything. I just want to get something from a restaurant like the rest of you.”
My heart broke. It was the first time that she was really expressing that she felt left out. She went on to tell me that every time we bring food home like this, the rest of us have our food from eating out and she just has food from home and she hates just watching us eat our special food. She said she just wants to be included.
We’ve spent close to 6 years protecting her from restaurants. We’ve packed safe meals every time we’ve gone out. We’ve avoided meals out just to keep her safe. We’ve cooked elaborate meals at home and ordered special ingredients just to make sure we had all the safe foods we needed right in our four walls. I’ve dreaded navigating menus. I’ve shed tears thinking about ordering from a restaurant and trusting them with her allergies. I’ve conjured up images of giving the epipen in the middle of the restaurant because an allergic reaction happened. To say I’m scared is an understatement.
But I also know I need to prepare her. I need to help set her up for the real world. I need to teach her how to navigate restaurants, menus, wait staff, and chefs. I need to help her have confidence using her voice in these situations. I have to be her example. I have to show her how to live with caution but not fear. Anxiety is a real side effect of life with food allergies. And I don’t want her to be paralyzed by it as she grows up.
So we started researching places to go. I started reading menus online, going to local allergy groups I’m in on Facebook, and calling places. I started using MY voice more and slowly but surely I started feeling more confident in letting her eat out at a few different places!
I wanted to share a few of those in hopes that they help others if in no other way than to help you know that it’s possible to navigate eating out, even with multiple food allergies! As a reminder, Asa is allergic to milk, egg, peanut, and some tree nuts.
One of National places that we found was Chick-fil-a. They have a great allergy menu online which makes it easy to plan before you go. (I linked their allergy menu above!) They have a separate fryer for their fries so they stay gluten free (yay!) and their grilled chicken is a great option for those with egg, milk, wheat, gluten, and nut allergies! Their kids meals also have options of fruit or applesauce as alternatives to fries. Asa and I have both eaten there safely multiple times now!
Another great regional restaurant we’ve come to love is Hawaiian Bros. (Their allergen menu is linked above!) Almost their entire menu is dairy, egg, and gluten free. They are also VERY allergy conscious. The best part – they serve Dole Whip as dessert! If you have allergies, you probably know what a treasure Dole Whip is! And if you don’t, find your local place with Dole Whip and get some pronto! For the record, Asa’s favorite food at Hawaiian Bros is the Luau Pig so try it if you go.
Our list is slowly growing and we’ve found some great local spots too. I’ll share more as I find them! Feel free to share yours too!
Asa starting preschool this past Monday. (It’s Friday night as I’m writing this.) I have so many things to write about but I’ve honestly been putting it off because I’m a little overwhelmed and exhausted by it all.
We knew this day was coming. She turned 3 in December and the plan was to enroll her then. With COVID, we decided to delay that start date a little. We finally felt it was the right time to send her, but our nerves on the allergy front haven’t lessened at all. How could they, really? This is the first time that she has ever really been with anyone other than our parents. We have left her in church Sunday school before, and honestly, even that brings me anxiety! But this is a whole new ballgame. Dropping her off, out of our sight, with complete strangers, knowing that we can’t be there to watch her every move is completely terrifying. It’s unlike anything I can even explain. If you have children, you know the anxieties that come with the first day of school. Now take those anxieties and amplify them by 100. Maybe that can help give you a little taste of what I was feeling leading up to Monday.
We tried to be extremely prepared. We contacted the school months ago and I met with the principal to talk about our concerns. (Reminder that Asa has 3 major food allergies – milk, egg, and peanut.) That led to a conversation with the school nurse to develop an individualized health plan to go over what to do in case of an emergency. We agreed that Asa’s EpiPen would stay in her backpack with her in the classroom at all times so that it would be readily available in case it was needed. We agreed that 911 as well as my husband and I would be called immediately if they even suspected she had been in contact with an allergen. We went over the snack list and agreed that we could send in our own snacks from home just to control exactly what she could have. She would be given soy milk instead of normal milk in the classroom. We sent over her allergy plan from her allergist. I even took time to label her EpiPen cases clearly with her allergens. We felt as prepared as we possibly could be, but the anxiety and fear was still there.
I bought her EpiPen cases from PracMedic and labeled them with her allergies myself using vinyl and my Cricut 🙂
Monday came and Asa was SO excited to start school. She had been wearing her backpack around the house for at least a week and was so excited that she was going to school just like her big sissy. She couldn’t wait to use her new water bottle and go meet her new teacher. She was excited and filled with hope. We were excited but also filled with fear. I tried to occupy my brain by making her a shirt for her first day. She wore it proudly and looked adorable when we dropped her off for her first day.
Our big girl on her first day!
After dropping her off with tears in our eyes, my husband and I both started saying that we still felt slightly unsettled. While developing her health plan with the school we had asked about having all of the kids hands/mouths washed or wiped down after snack time to ensure that no allergens were left on them after they ate and drank. We were told that wasn’t really feasible. It wasn’t sitting well with us.
I posted on Facebook about Asa’s first day of school and asked for people to be praying for our anxieties and for her to be safe. A fellow allergy mom reached out to me and asked if we had a 504 in place. My response was basically, “A 50-what?” I had no idea what a 504 was. A 504 for food allergies is essentially a kind of written management plan that is very commonly used for several kind of disabilities or health conditions including food allergies. More information on them can be found here. She advised that we work on one immediately as they are legally binding and are more official than the individuated health plan we had already created (which was still a great first step).
I immediately started looking up information. I also posted in a local group on Facebook to try to find other food allergy parents in our school district who already had 504s for their children to see if they would share their experiences with me. I was in the luck! I had one of them immediately message me and then ask if she could call me. She talked to me like we had known each other for years. The food allergy community is amazing. Once you have a child with food allergies – you just get it. You understand the struggles, the fears, the constant worry, and you just empathize in a way that makes you want to help others. She told me that part of her child’s 504 includes his classmates washing their hands after they eat every single time. (That was funny since we were told that wasn’t feasible.) She armed me with a lot of great information.
I reached out to the principal, the school nurse, and Asa’s teacher immediately. We set up a meeting to discuss a 504 and talk about our concerns. In the meeting with them, I started by saying that I didn’t ask to have this meeting because I thought they were doing a horrible job. I was actually really impressed with the way our district handles food allergies and think that they are leaps and bounds above other school districts in this matter. I thanked them for their help so far. I then told them that they needed to understand that one small accident could lead to my child’s death. I explained that it’s hard for me to feel confident leaving Asa in anyone’s care when I don’t even fully trust myself. I have to double and triple check every single thing I give to her because I never know when I manufacturer that I trust is going to change their recipe or change their factory and make it unsafe for my daughter. I am constantly concerned that one little slip up could result in an anaphylactic reaction. I also explained that in her 3 years of life we have had to use an EpiPen 2 times. I said that the last thing that I wanted was for a teacher or a staff member to have to administer an EpiPen to her. It’s stressful and scary and I didn’t want them to have to go through that. I tried to be firm and blunt but understanding and caring in my delivery.
They were so incredibly helpful. When we brought up the hand washing this time, they didn’t bat an eye. In fact, they took it a step further and said that it may be better to just remove the allergens from the classroom altogether. (YES, PLEASE!) They are writing up her 504 right now and we will have it completed in the next couple of weeks. With the 504, it will follow her throughout the district as she moves up in grades but will be adjusted every year based on her needs, so we will have these meetings yearly.
I wanted to write all of this out because I thought it was important information for others to have. I know that we are all in various stages of our food allergy journeys. Maybe you aren’t even a food allergy parent, but you are reading this to be informed, and if you are – thank you! Seriously, from the bottom of my heart, thank you. When I posted in the Facebook group asking for allergy parents who have made a 504, I had several people comment telling me “504s aren’t for allergies” or “just talk to a principal”. Many people were immediately dismissive of me for absolutely no reason. It was incredibly disheartening. Along with that, I had a lot of allergy parents come to my defense and offer their support and help. I hope that this blog if one of those resources to those of you fighting this fight. I know the fears you face every day because I face them too.
I have still been spending this week thinking of even more ways to keep Asa safer. I added more visuals to her backpack to remind people of her allergies.
Got these lanyards (left) from Target awhile back so I turned it into a tag for her backpack! I have extras so if you want one – hit me up and I’ll send one to you! The little EpiPen clips (right) were purchased from Amazon here.
I don’t think that will ever stop. I’ll probably always be innovating new ways to make her allergies more known so that she is safer at school. For now though, she made it through week 1 and I feel more empowered after advocating for her and using my voice to speak up! I’m also super thankful to the food allergy mom who called me even when she didn’t know me because she encouraged me to do just that! (Shoutout Kristin!) And special thanks to Sarah who is always a huge support for me and messaged me about the 504 in the first place!! You’re a rockstar!! If you have questions about anything I mentioned in this blog, please don’t hesitate to reach out! Or if you just want to vent or talk, I’m here for that too.
A couple weeks ago, I went to my social media platforms and asked for people to send me what their advice for new food allergy parents would be!
I had over a dozen people send me their advice. I wanted to make sure to share them all on the website as well because we got some really great ones! Which one resinates with you the most?
Ever wanted friend ice cream but didn’t want to mess with actually having to deep-fry something? Well look no further! Here is a super easy 5 minute recipe! Added bonus – you can even make this vegan!
Ingredients:
Vanilla ice cream of your choosing (I used a vegan ice cream to keep it allergy friendly!)
Corn flakes (or you can substitute Frosted Flakes or Honey Nut Frosted Flakes)
Sugar
Margarine or butter (again, I used a vegan margarine to keep it allergy friendly)
Honey and/or chocolate syrup
Directions:
Scoop out your ice cream and put it in the freezer.
Add margarine, corn flakes, and a bit of sugar to a small pan and sauté the corn flakes for a few minutes. If you choose to use Frosted Flakes or Honey Nut Frosted Flakes (like I did here!) you can skip the extra sugar.
Lay the corn flakes onto a plate and gently roll your ice cream in the corn flake mixture. You can use your hands to add extra of the corn flake mixture into your ice cream.
Drizzle with honey (pictured), chocolate syrup, or any topping of your choice. You could also add whipped cream and a cherry if you want to get extra fancy. 😉
My son turned 6 months old about a week ago. He’s the final piece of the puzzle to our little family and has been such an amazing blessing! He’s rolling, laughing, and sleeping in his own crib in his own room. He’s growing up and it’s so fun to watch. Every milestone he hits makes me proud and emotional. But there’s one milestone that I’ve been secretly dreading…
I’m terrified of starting to try foods. Up until this point he’s been solely breastfed. As we begin to try solids, my nerves about food allergies start to rear their ugly heads.
We didn’t discover his big sister’s food allergies until she was almost a year old. (To see how we discovered her allergies, click here.) She had also been exclusively breastfed for the first 6 months and she had a hard time learning to eat solids at the beginning. She was a little behind physically for awhile which made eating harder for her. (We got PT for that and it was AMAZING! But that’s a different story…) Because of that, we didn’t introduce allergens super early on. I also had basically no understanding of food allergies at the time so I had no idea about the research about how introducing early can help prevent allergies.
This time, I’m a little more well-informed. There is a lot of research about the benefits to introducing top allergens like peanut and egg earlier rather than later. (For some great links and articles, check out this page of the Food Allergy Research and Education’s website.) When we took Ezra to his 6 month appointment this week, his doctor recommended that we try peanut butter soon.
On one hand, I’m thankful for a progressive doctor that is trying to watch out for him! On the other hand, I’m terrified. I know that we need to do it. And in some ways, I feel more prepared this time around, but I can’t shake the anxiety and fear that comes with it. I’ve wondered since I was pregnant if he would end up with food allergies just like his sister. I’ve wondered what it would be like to have to worry about BOTH of them daily. I’ve wondered what we would do if he ended up with different allergens than Asa and we had to change our lifestyles once again.
Food allergies are one of those things that you don’t really understand until you’re faced with them. As least, I know I didn’t. I knew about them, but only in a hypothetical way. I didn’t know the reality of them. And the reality is plagued with lots of fear, frustration, inconvenience, and sometimes even anger. You wonder why this is happening to your child. You deal with the fact that not many people will understand the daily struggles you face. You pray that one day your child with grow out of their allergies or that a cure will be found.
I will most definitely update after we begin to try foods with him, but in the meantime, please be praying for us as we face a fear!
On November 27, 2018, we found out that my 11-month-old daughter was allergic to dairy. I suspected she might be after two strange incidents. The first incident involved vomiting violently after eating a new baby puree. When I checked the ingredients of the tub of baby food, I saw that it had pineapple and milk – two things she had never had before. I wondered if that could be a cause but I quickly dismissed the thought and returned to life as normal. A month or so later while eating out at a restaurant, my daughter got ahold of a butter packet on the table. She chewed on it, busted it open, and made a mess. I didn’t think much of it – after all, my kids have done much worse before. But about 10 minuted later, I noticed that she had a swollen upper lip.
At first I thought she must have hit it when the packet exploded. Then my mom brain kicked in – what if this was the milk in the butter? Could she be having an allergic reaction? Again, I sort of dismissed my thought but her lip was only getting worse so we decided to be safe and head to urgent care.
The doctor said that it did, indeed, look like an allergic reaction. My head started spinning. There’s no way she’s allergic to milk, right? Not my kid. We made a follow up with our pediatrician who referred us to an allergist just in case. Two weeks before my daughter’s first birthday (you know… the one where they are start drinking whole cow’s milk…) we found out that she had a dairy allergy. What did this mean??? They ordered us an epipen, quickly taught us how to use it, gave us about 20 sheets of information about allergies, asked if we had any questions and sent us on our way. Did I have any questions? Um… yeah… about a thousand. I couldn’t even wrap my head around this food allergy. No one else in my family or my husband’s family had ever had a food allergy. I had no idea what it really meant. But boy, was I about to find out.
Within a couple months, our allergist had us try a few other foods – soy, egg, peanut. Soy didn’t produce an allergy. Thank God! One down! When my husband tried peanut butter one day while I was at work, he thought we had made it through that one as well. She was acting fine. But the moment I walked in the front door after work, I saw a tiny spot on her skin. We started checking her and the hives literally started spreading before our eyes. We called 911. I had to give the epipen. My daughter was crying hysterically. I was putting on a brave face but inside I was terrified. We went to the hospital to be monitored. Thankfully, the epipen worked and we were discharged within a few hours.
Another month went by and we introduced egg. This time, we were both home when we did it – we were scared to do it alone. Her reaction to the egg was scarier than anything we had ever experienced. She broke out in hives. BAD hives. So bad that they spread to every inch of her body. I called 911 to be safe. I wanted them to check her lungs. While on the phone with them, my daughter started wheezing. My husband and I looked at each other and knew that the epipen was needed. I once again slammed the needle into my daughter’s leg. She once again cried. We were once again terrified. We went to the hospital, as you always should after administering an epipen. But this time was worse.
The hives started spreading again. She was crying and lethargic. She was laying on me and not letting go. I was praying – literally. The doctor said they were going to have to do another round of epi. They went to place the order. I was filled with fear. Why wasn’t this working? Why was she so lethargic? Was she going to be ok? I prayed again – literally. Right before the doctor came back in the room, her hives started subsiding. She started acting more like herself. Thankfully, we escaped having to administer more medicine, but the fear remained.
My husband and I went home that day more scared than ever. It was the first time we had REALLY seen the potential danger of her food allergies. This was more than hives. This had effected her breathing, and that’s something you never want to see your child go through. From that moment on, we became more vigilant than ever. Throughout the past year, we’ve learned a ton. We still mess up. Food allergies are really difficult to navigate. And out of that, this blog/site was born. My goal is help provide support, educate others, and share some tips and tricks along the way! Like it or not, I’m a food allergies mom. I hope this will help some others out there like me!
Food Allergies Mom 