Tag: allergy education

FDA LOOSENS GUIDELINES FOR FOOD LABELING DUE TO COVID-19! What does it mean and how can you help?

foodallergiesmom

This week has brought some very disheartening, frustrating, and honestly scary news for the food allergy community.

This past weekend, the FDA issued new guidance that loosens up the labeling requirements for non-top 8 food allergens due to COVID-19. This guidance came as a shock to everyone in the food allergy community – including Food Allergy Research & Education (or FARE). The new guidance does not effect rules with the top 8 allergens, but it does create problems for millions of food allergy families who are constantly searching for safe foods.

The FDA lists that the goal of the new guidance, “is to provide regulatory flexibility, where fitting, to help minimize the impact of supply chain disruptions associated with the current COVID-19 pandemic on product availability.” And while this makes sense on one-hand, it also means that families that rely on very clear and strong labeling laws are now at risk. The FDA guidance goes on to say, “For example, we are providing flexibility for manufacturers to use existing labels, without making otherwise required changes, when making minor formula adjustments due to unforeseen shortages or supply chain disruptions brought about by the COVID-19 pandemic.”

The FDA does it make it clear that the top 8 allergens (along with a handful of others – sesame, celery, and mustard to name a few), may not be substituted without clear labeling. It does not, however, include rules for dozens of other ingredients that can cause anaphylactic reactions in people with food allergies. Keeping the guidelines the way they were would cost the food companies a headache along with some money. But changing these guidelines like they did could cost someone with a food allergy their life.

How is it the entire country/world has entered and accepted this current pandemic and taken drastic measures to prevent the spread of it, but yet there is a pandemic, if you will, around food allergies… that has not received near the attention it should? This is a life or death situation daily, and for their entire lives, for these individuals… and now the audacity of the FDA to lessen the required labeling is sickening and appalling.

– Katie Fraunholtz – fellow food allergy mom

All of this is on top of the stress and fear that many food allergy families are facing right now due to limited food supplies from COVID-19. Because grocery stores are selling out of “normal” items, many people are turning to allergy-friendly alternatives instead. This limits the availability of those allergy-friendly foods for those that NEED them. I know in our family, we have had to go to a handful of stores in one trip to find the allergy-friendly essentials we need to feed our daughter. Now with this, options could be even more limited (or non-existent) for those whose allergies are outside of the ingredients listed in the new FDA guidance.

Many organizations, food allergy families, and food allergy allies are looking for ways to stop this new guidance. FARE has asked that food allergy families join in the fight to ask the FDA to re-think these new guidelines. A simple way to do so is by filling out a short form at regulations.gov and putting your concerns in the “Comment” box. Be sure to include your name and hit “submit” when finished.

We need to send a strong message to the FDA, and by taking action today, you can be a voice for the 32 million Americans who depend on strong labeling laws to protect their health and safety.

– Food Allergy Research & Education

I beg you to please take the time to fill this out! If there has ever been a time to stand up for those with food allergies, it’s now.

CLick Here to voice your concerns to the FDA

Food Allergy Education Resources

foodallergiesmom

May is Food Allergy Awareness Month and May 10-16 was Food Allergy Awareness Week. In honor of that, I worked hard over the last couple of months to create some food allergy education resources!

As a food allergy mom, I’ve seen the need for creative ways to explain food allergies to kids. So, I decided to create an educational activity book geared towards kids ages 3-8. It helps explain food allergies through interactive, printable pages that can be used at home or in school! 

If you have a child with food allergies and are looking for a way to educate other kids about those allergies, this if for you! If you are looking for a way to teach your child about food allergies so they can better support their friends, this is also for you!

The activity book is available through my Etsy shop here.

It’s only $5.50 and $1 of every activity book purchased will be donated to Food Allergy Research & Education to support food allergy research!

Each order contains a 6-page activity book that you can print as many times as you’d like once you have purchased it! I used the book with my kindergarten daughter and she loved it! It was great to teach her more about her sister’s allergies but also to teach her about other food allergies as well. I hope it’s as useful for some of you as it is for us!

The second thing I created is a food allergy coloring book just for kids with food allergies! It contains a page specific to each of the top 8 allergies. It covers the very basics of what it means to have a food allergy and gives them coloring pages to talk through it! It’s available to purchase from my Etsy shop here for only $3. 

These were truly a labor of love for me and I would be extremely grateful if you would consider using it with your own children! Every kid who knows about food allergies is a kid that can help keep my daughter safe! ❤️❤️

Becoming a Food Allergy Mom

foodallergiesmom

On November 27, 2018, we found out that my 11-month-old daughter was allergic to dairy. I suspected she might be after two strange incidents. The first incident involved vomiting violently after eating a new baby puree. When I checked the ingredients of the tub of baby food, I saw that it had pineapple and milk – two things she had never had before. I wondered if that could be a cause but I quickly dismissed the thought and returned to life as normal. A month or so later while eating out at a restaurant, my daughter got ahold of a butter packet on the table. She chewed on it, busted it open, and made a mess. I didn’t think much of it – after all, my kids have done much worse before. But about 10 minuted later, I noticed that she had a swollen upper lip.

At first I thought she must have hit it when the packet exploded. Then my mom brain kicked in – what if this was the milk in the butter? Could she be having an allergic reaction? Again, I sort of dismissed my thought but her lip was only getting worse so we decided to be safe and head to urgent care.

The doctor said that it did, indeed, look like an allergic reaction. My head started spinning. There’s no way she’s allergic to milk, right? Not my kid. We made a follow up with our pediatrician who referred us to an allergist just in case. Two weeks before my daughter’s first birthday (you know… the one where they are start drinking whole cow’s milk…) we found out that she had a dairy allergy. What did this mean??? They ordered us an epipen, quickly taught us how to use it, gave us about 20 sheets of information about allergies, asked if we had any questions and sent us on our way. Did I have any questions? Um… yeah… about a thousand. I couldn’t even wrap my head around this food allergy. No one else in my family or my husband’s family had ever had a food allergy. I had no idea what it really meant. But boy, was I about to find out.

Within a couple months, our allergist had us try a few other foods – soy, egg, peanut. Soy didn’t produce an allergy. Thank God! One down! When my husband tried peanut butter one day while I was at work, he thought we had made it through that one as well. She was acting fine. But the moment I walked in the front door after work, I saw a tiny spot on her skin. We started checking her and the hives literally started spreading before our eyes. We called 911. I had to give the epipen. My daughter was crying hysterically. I was putting on a brave face but inside I was terrified. We went to the hospital to be monitored. Thankfully, the epipen worked and we were discharged within a few hours.

Another month went by and we introduced egg. This time, we were both home when we did it – we were scared to do it alone. Her reaction to the egg was scarier than anything we had ever experienced. She broke out in hives. BAD hives. So bad that they spread to every inch of her body. I called 911 to be safe. I wanted them to check her lungs. While on the phone with them, my daughter started wheezing. My husband and I looked at each other and knew that the epipen was needed. I once again slammed the needle into my daughter’s leg. She once again cried. We were once again terrified. We went to the hospital, as you always should after administering an epipen. But this time was worse.

The hives started spreading again. She was crying and lethargic. She was laying on me and not letting go. I was praying – literally. The doctor said they were going to have to do another round of epi. They went to place the order. I was filled with fear. Why wasn’t this working? Why was she so lethargic? Was she going to be ok? I prayed again – literally. Right before the doctor came back in the room, her hives started subsiding. She started acting more like herself. Thankfully, we escaped having to administer more medicine, but the fear remained.

My husband and I went home that day more scared than ever. It was the first time we had REALLY seen the potential danger of her food allergies. This was more than hives. This had effected her breathing, and that’s something you never want to see your child go through. From that moment on, we became more vigilant than ever. Throughout the past year, we’ve learned a ton. We still mess up. Food allergies are really difficult to navigate. And out of that, this blog/site was born. My goal is help provide support, educate others, and share some tips and tricks along the way! Like it or not, I’m a food allergies mom. I hope this will help some others out there like me!